I
would like to tell you about our wonderful little girl Krystal. She
was the most delightful child anyone could ever hope to meet. When
she was born weighing 2 pounds and 13 ounces the doctors didn't have
any hope of her living. When she was still thriving after a week
they said...she won't live much longer.
That
is when my family came on the scene. We were foster parents for DHS.
Someone from there called to see if we would be willing to take this
tiny little girl that was not expected to live and take care of her,
without hesitation we said "yes".
As
it turned out she lived longer than they expected. We adopted her
and she brought us much joy for 8 years.
She
had much to live with being diagnosed withMicrocephaly,
Cerebral
Palsy,
andCytomegalovirus
Infection (CMV).
Having these problems left her legally blind, with seizures,
quadriplegic and not able to do anything for herself in any way.
She wore special shoes and braces, we put her hands in braces off
and on during the day. She had to sleep and sit elevated at all
times because of reflux. She would not suck or chew so she was fed
through a GT button. I had to use a machine to clean out her nose
and throat, sometimes she had to be on an updraft machine, she took
many medications throughout the day and night.
We made many trips to Children's Hospital and sometimes it felt as
if she and I lived at the hospital because I stayed with her every
second. I provided all of her care even changing her bed. The nurses
just gave her the meds and the respiratory therapists did what they
needed to. We had many friends at the hospital and no matter how
sick Krystal was
she always had smiles for them and knew them by their voice.
She
had the most wonderful smile and would even sometimes laugh out loud
or giggle. Everyone that ever saw her remembers her for that big,
wonderful, happy smile that she gave everyone.
I
miss Krystal very much, I miss her smile, and getting to touch and
hold her. But I know now she is in a better place and that helps me
to keep going on with my life I hold her in my heart and keep
replaying in my mind the wonderful memories we made together.
She
loved her daddy very much and they had their own way of conversing
as did she and I. I knew by the different sounds she made what she
wanted. I could also tell by her facial expressions some times what
she was needing, but she never could say words other than
"hey" and I can't say that was really a word, it was just
a sound she made that sounded like she was saying "hey".
No
matter how Krystal felt, good or bad she always had a smile and
never cried or complained. She kept her mama in line as far as being
thankful. Seeing her as she was and still able to smile made all my
trials seem very trivial.
Since
she loved drums so much I could not see her going from this life to
the next without drums so at her funeral I asked our pastor to play
his drums. Everyone commented to me that they had never been to a
funeral with drums, nor had they ever been to a funeral so upbeat.
Several told me that they felt happy and at peace all during the
service. It was the way Krystal would have liked it and I would not
have it any other way.
I
thank God for the privilege of getting to care for and love this
wonderful little girl for those eight years and I appreciate him
trusting me to care for her while she lived on this earth.
Thank
you, for stopping by to meet our sweet little girl. If you would
like to share your site with me or have comments, please feel free
to email me and I will get right back with you.
VIEW
PICTURES OF KRYSTAL BY CLICKING THE ANGEL ABOVE
